Survivors Helping Survivors Connect with people who know what you are going through.
Hi! My name is Joanie Peckels. I had a carotid dissection 21 years ago when I was 35. It will be 22 years August 26th! When I had my stroke I was totally paralyzed on my right side and I could not speak at all for 2 weeks. During that time I could not read or add 1 and 1 together. I had two little kids aged 6 and 8. I was right handed but now I’m left handed for the second half of my life! I have come a long way and now, I volunteer at PeaceHeath SW hospital as a Stroke Ambassador and I am a grandma! I have helped run the PeaceHealth Stroke and Brain Injury Group with the Stroke Coordinators there for about 14 years.

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I also just received this.  It appears legit so if you want to participate you should.

 

Dear Joanie,

 

Hope you’re doing well. My name is Alex and I’m with LaGrippe Research, a market research firm specializing in medical market research. We are currently working on a study concerning the treatment of strokes. We’re interested in speaking with individuals in the US, who have recently experienced a stroke within the last few years,  to talk about their experiences. We wanted to see if your support group would be interested in helping us spread the word about our project. We would be happy to compensate you for these efforts.  

 

We will be conducting 60-minute Zoom interviews with stroke patients through the dates of July 21-23rdThose that qualify and participate will be compensated with $150 as a thank you. This study is double-blinded, and participant’s personal information is held confidential from the end client and in accordance with HIPAA by-laws. 

 

If this sounds like something you would be interested in assisting with, please let me know and I can send language for sharing. If you have any questions or would like to discuss more in depth, please feel free to relay through email or I am happy to schedule a phone call. Thanks in advance for your consideration! 

 

Best,

 

 

Alexander Lampe

Recruiting Specialist

(o)224-360-7929

www.lagripperesearch.com

Here is our mixed up Zoom schedule!

 

Thursday, July 15 ZOOM AT 11:00 (Babysitting again)

Wednesday, July 21 ZOOM AT 11:00 (Back on schedule!)

Wednesday, July 28 ZOOM AT 11:00 (Back on schedule!)

Tuesday, August 3 ZOOM AT 11:00 (Babysitting again)

 

I have been requested to start meeting at Benny’s again since everything is open.  How about if we use one of the Zoom days and meet there for lunch like we used to? Once a month is good right? How about  Wednesday, July 28th?

Hi Stroke & Brain Injury Group!

Zoom will be Thursday this week! 

We had a fun time in Lewiston last week!  We went on a 26 mile bike ride from Moscow to Pullman and back again.  They have the nicest trails! The next day we went on the Clarkston side of the Snake River up to Asotin and back again. It was about 12 miles.  Here are some pictures of both rides.

 

Zoom Info!!
Joanie Peckels is inviting you to a scheduled Zoom meeting.
 
Topic: Joanie Peckels' Stroke & Brain Injury Zoom Meeting!
Time: July 15, 2021 11:00 AM Pacific Time (US and Canada)
 
Join Zoom Meeting
https://us02web.zoom.us/j/81079780524?pwd=aTM5K0QxQnJWZHEwRmhEMmZpVEpZdz09
 
Meeting ID: 810 7978 0524
Passcode: 550881
One tap mobile
+12532158782,,81079780524#,,,,*550881# US (Tacoma)
 

 

 

Our PICNIC will be August 28, 2021!!


Great Websites or Services!

 

Peak Pro App~ Fun and challenging!  $37.93 per year from your app store.

 

CDM~Great for for socializing, doing Zoom every weekday at the moment.  They play games, sing, do art projects (supplies are delivered to you) and when it is in person they give each client a free Cvan bus pass. Website: cdmcaregiving.org 360-896-9695 Email: info@cdmcaregiving.org

 

Comcast Affordable High Speed Internet~ $9.95 a month!!

www.Internetessentials.com.  SSI/medicaid/Housing Assistance qualify. They also have low cost computers. 

 

OT Lifestyle Solutions~ A great Facebook page by Occupational Therapist Sue Doyle. She always posts great ideas and info on Stroke Rehabilitation, Home Safety & Accessibility Evaluations, Fall Prevention and of course Occupation Therapy.  She also has her own business.  360-723-5145. http://www.otlifestylesolutions.com/

 

Sitting Tai Chi & Gentle Exercises~ DianeToland@aol.com. 360-953-0399.

 

The Aphasia Network~ Lots of programs!  Aphasia Camp at Camp Mc Gruger in Rockaway, OR is especially popular.  Contact Suzanne Gardner 

503-577-1282, suzanneg@aphasianetwork.org or the website www.aphasianetwork.org.

 

Northwest Brain Network~ Lets you know about The Backstrokes and NUMEROUS other speakers and information. https://www.nwbrain.network/.  Zoom Backstrokes is at 11:00 Mondays and speakers are at various times. 

 

SATBIL Magazine~ Lots of information and stories by stroke and brain injury people. SATBILMagazine@gmail.com

 

Loving Them Forward~ A fantastic local organization that has vetted businesses to help with just about anything you can think of! Christina Keys at loveingthemforward@gmail.com or https://lovingthemforward.org 

 

Brain Injury Connections-NW (BIC-NW)~A Portland organization that provides lots of local info. info@bicnw.org 

 

A FaceBook Group Called:  Stroke Caregiving “Wives” Only

 

A Caring Closet~ An excellent place to get used durable medical equipment for free!  And also to donate to it as well.  360-258-0039

1206-C NE 146th Street Vancouver, WA 98685.  acaringcloset.org is their website. 

      

Area Agency on Aging & Disabilities of SW Washington~ They offer a multitude of programs, most them need based but there are some that everyone can participate in.  www.HelpingElders.org is an awesome site.  Information & Assistance 360-694-8144.  201 NE 73rd St, Ste 201, Vancouver.  iaclark@dshs.wa.gov

 

C-Van~ For those who can’t drive.  There is a form for you and your doctor to fill out.  They will take you anywhere within their boundaries.  It doesn’t have to be medical but you do have contact them ahead of time.  The cost per ride is $1.80, for each direction. Not need based but you have to be a certain distance from a bus stop.  www.c.tran.com  360-695-0123.

 

Brain Injury Alliance of Washington~ biawa.org

 

AMERICAN STROKE ASSOCIATION~ stroke.org

 

Post Concussion Syndrome~ A Facebook Group

 

Kailey Cox’s LIFE AFTER STROKE: EDUCATION & CONNECTION

2nd Tuesday of each month from 6 p.m. to 7:30 p.m. Register by emailing: LIFEAFTERSTROKE@providence.orgA Zoom Meeting

 

Bri Fairley, M.S. CCC-SLP, President, Founder Atlas Aphasia Center

Website: www.atlasaphasia.org Phone: 206-256-1168 Email: bri@atlasaphasia.org ~ Offering Speech Therapy

 

Boomerang Therapy Works~ Excellent Physical Therapy!  NEW LOCATION! 4201 NE 66th Ave, Suite 104, Vancouver, WA 98661. Just North of the SR 500 & NE Andresen Rd interchange. 360-258-1637. boomerangpt365@gmail.com. http.//boomerangtherapyworks.com/

Movies

 

Aphasia- Hope Is a Four Letter Word.  By Carl McIntyre, an actor and Stroke Survivor.  The movie itself is only 40 min but there are several interviews with his Speech Pathologist, Denise Caignon and renowned Speech Pathologist Dr. Nancy Helm-Estabrooks.  2012

 

A Not So Still Life- The Ginny Ruffner Story. A Brain Injury Survivor. 2010

 

Carl McIntyre and Hope Is A Four Letter Word

Books
 
If you look under “Stroke and Brain Injury” on Amazon you will find a myriad of books on recovery.  These are the ones that I know of personally or have been recommended to me.  Several of them I purchased as audio back in the day, either cassette tape or CD.
 
Hope Heals.  By Katherine & Jay Wolf.  A great story of stroke survival.
 
 
My Stroke of Luck. By Kirk Douglas.  His own personal story.
 
 

Kate’s Journey.  By Kate Adamson.  OR

Kate Adamson Paralyzed but Not Powerless.  Kate’s Journey Revised.
Her story of surviving a brain stem stroke and locked-in syndrome.  I have seen her speak twice.  Once in Appleton, WI, and once with Holly in Salem, OR.  Very good.
Gabby: A Story of Courage & Hope.  By Gabby Giffords & Mark Kelly.  She was a politician (still is I think!) who was shot in the head while at an event.  This was really good on audio.  It is read by Mark Kelly, her astronaut husband and Gabby herself.  Like a lot of brain injuries, she presents as if she had a stroke.
 
 
Change in the Weather:  Life After the Stroke.  By Mark McEwen a TV weather man who had his stroke on an airplane. Or
After the Stroke My Journey Back to Life.  By Mark McEwen & Daniel Paisner (I think they are the same book published different years but I could be mistaken!)

My Stroke of Insight: A Brain Scientist’s Personal Journey.  By Jill Bolte Taylor, PhD. 

One Handed in a Two Handed World.  By Tommye-K. Mayer.  A great book with all kinds of ideas to do frustrating things with one hand.
Stronger After Stroke, Third Edition: Your Roadmap to Recovery .  By Peter Lavine
Healing & Happiness After Stroke for Caregivers & Survivors: The Holistic Guide to Getting Your Life Back.  By Tsgoyna Tanzman

Post-Concussion Syndrome: An Evidence Based Approach.  By William D. Boyd 

Chicken Soup for the Soul: Recovering from Traumatic Brain Injuries: 101 Stories of Hope, Healing, and Hard Work

The Brain's Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity

Identity Theft: Rediscovering Ourselves After Stroke

Awoke By A Stroke: My Roadmap To Restoration

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